MS, Inc. - Multiple Sclerosis Blog - Everyday Health

Far earlier than the mid-winter moon set behind the hills of west Kerry this morning, the morning after news broke that Biogen Idec purchased Tysabri from its partner and inventor of the drug, Elan for a whopping $3.25 Billion (that?s $3,250,000,000), I lay awake trying to fathom the vastness of the news. I am no mathematician on my best days and ever since my attack in August of 2011 I still have an aversion to numbers. Still, the thoughts rumbled in my head.

Even at current wholesale prices and using the figures posted by the company itself (that over 99,000 people worldwide have ?taken? Tysabri not ?are on Tysabri therapy?) I see over 15 years to pay for the purchase. Were I an investor ? which I am consciously not an investor in pharmaceutical companies so as not to appear to be swayed by financial gain ? I don?t think I?d want to wait 15 years for the return on an investment.

Must be something else going on. What; I?ll not speculate for that?s all it would be? but it must be something.

Now, several cups of coffee, hours of interweb research and I?m no closer to understanding it all. But I will admit that the whole topic is becoming an irritating raspberry seed in my wisdom tooth.

So, I offer to begin (yet another) occasional series on the Life With MS Blog. We?ve a few others topics I post about on an ad hoc, as necessary basis (Life with MS In Box - MS Money Matters - , etc) Today I?d like to introduce an opening for topics under the header ?MS, Inc.?

I don?t know exactly where this will go or how often the topic will be raised (because, quite frankly, I need my sleep and this stuff keeps me up at night!

So, as I often do, I?d like to start by asking you if you?ve any thoughts on what subjects might generally fit under the heading MS, Inc. What might you like to read about? Where do you see profit vying with people when it comes to MS? Are there places where we might shine a light to the underbelly of chronic disease?

I am no investigative reporter. I don?t have the energy, wherewithal nor inclination to live on black lists. And I certainly do not want to go off half-cocked about topics I don?t know enough about. There are, however, ways to open up topics for discussion ? real discussion, not just people spouting off unsubstantiated opinion without a lick of evidence or precedence ? so we might find answers and occasionally expose poor deeds.

Have you ever been contacted by someone who offers unsolicited ?help? but at a price? Have you encountered scams when it comes to living with your disease? Do you ever feel like there?s something ?going on? and you just can?t put your finger on it?

Give us some ideas and we?ll see what we can?t do. No promises; I really am trying to enjoy the ride? even if my brakes are on.

Wishing you and your family the best of health.

Cheers

Trevis

You can also follow me via our Life With MS Facebook page, on Twitter, and in our group on MS Connection.org. Also, check out our bi-monthly MS blog for the United Kingdom, look for our very special new monthly blog for the National MS Society, and don?t forget to check out TrevisLGleason.com.

Source: http://www.everydayhealth.com/blog/trevis-life-with-multiple-sclerosis-ms/ms-inc/

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